Amplifying Rare Voices: Patients, Health Experts and AstraZeneca Push to Accelerate More Equitable Rare Disease Care in the Philippines
(L-R: Dr. Donna Sarrosa, pediatric dermatologist; Dr. Loudella Castillo, pediatric neurologist; Cathy Enteria, NF1 patient caregiver and mother; Hellen Driz, Lupus advocate; Araceli Lanorio, NF1 advocate; Lotis Ramin, country president, AstraZeneca Philippines; Dr. Melanie Alcausin, UP-NIH; and Jeremie Soriano, PSOD member). Healthcare experts and patient advocates gathered in a roundtable discussion tackling the urgent needs of people living with rare disease . MANILA, Philippines — Rare disease is a group of disorders affecting 400 million people globally, affecting more people than cancer or AIDS combined. 1 Defined as diseases occurring in one in 20,000 Filipinos, people living with rare diseases often experience reduced quality of life, with their families facing significant social and economic burden. 2 In observance of Rare Disease Week 2026, AstraZeneca Philippines, together with healthcare experts, government representatives, and patient advocacy groups, co...